Family support

It  might be helpful for parents of children affected by kernicterus to talk with  one another. One parent might have learned how to address some of the same  concerns another parent has. Often, parents of children with special needs can  give advice about good resources for these children.
Remember  that the choices of one family might not be best for another family, so it’s  important that parents understand all options and discuss them with their  child’s health care providers.

Families and individuals with kernicterus can find support in the following places:

 

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