Publications

Patient Safety & Quality Healthcare, We're not Your Enemy: An Appeal from a Consumer to Re-imagine the Tort System (July-August 2007)
http://psqh.com/julaug07/tortreform.html

Wall Street Journal, Baby Has Jaundice: Is That a Problem? (February 6, 2007)
http://online.wsj.com/article_email/SB117073404433599202-lMyQjAxMDE3NzAwNjcwMzY0Wj.html

Patient Safety & Quality Healthcare, An Honest Approach to Patient Engagement (November/December 2006)
http://psqh.com/novdec06/consumers.html

Pediatrics, Clinical Practice Guidelines, American Academy of Pediatrics, Management of Hyperbilirubinemia in the Newborn Infant 35 or More Weeks of Gestation (2004)
http://aappolicy.aappublications.org/cgi/content/full/pediatrics;114/1/297

Johnson LH, Brown AK, Bhutani VK, System-based approach to management of neonatal jaundice and prevention of kernicterus, J Pediatrics 2002: 140: 396-403.

Leape LL, Berwick DM, Bates DW, What practices will most improve safety? evidence-based medicine meets patient safety,  JAMA 2002: 288: 501-507.

National Quality Forum, Serious Reportable Events in Healthcare. Washington, DC: National Quality Forum; 2002.

Committee on Quality Care in America, Institute of Medicine, Crossing the Quality Chasm: A New Health System for the 21^st Century. Washington, DC: National Academy Press; 2001.

The Joint Commission, Kernicterus threatens healthy newborns, Sentinel Event Alert, Issue 18; 2001.

Kernicterus in Full-Term Infants -- United States, 1994-1998
MMWR 2001: 50(23); 491-494.

Newman TB, Maisels MJ, Evaluation and treatment of jaundice in the term newborn. A kinder, gentler approach. Pediatrics 1992: 89: 809-818.

Testimony by Susan E. Sheridan at the National Summit on Medical Errors and Patient Safety Research.
http://www.quic.gov/summit/wsheridan.htm for full online text.

Links

• Agency for Healthcare Research and Quality
• American Academy of Pediatrics
• American Speech-Language-Hearing Association
• Association of University Centers on Disabilities
• Centers for Disease Control and Prevention
• Genetic Alliance
• Healthy Mothers, Healthy Babies
• The Joint Commission
• Kernicterus and Newborn Jaundice Online
• March of Dimes Foundation
• National Healthy Mothers, Healthy Babies Coalition
• National Information Center for Children and Youth with Disabilities
• National Initiative for Children's Healthcare Quality
• National Institute of Neurological Disorders and Stroke, National Institutes of Health
• National Organization for Rare Disorders
• Tourette Syndrome Plus
• Treatment Centers for Pediatric Movement Disorders
• United Cerebral Palsy (UCP)
• We Move: Worldwide Education and Awareness for Movement Disorders